Blake McCaughey is 15 years old. Since being born prematurely, he has experienced a physical life that would crush the spirit of most ordinary people. He has missed a very great deal of what comes naturally and normally to the overwhelming majority of children. Blake suffered pneumonia nineteen times in the first two years of his life. This led to him having to live life ‘nil by mouth’ – no food or drink at all. Blake continued to challenge doctors with his uniqueness as to why his muscles were so weak, his swallow unsafe, his lack of weight gain and growth. Fast forward to May 2019 and Blake became incredibly ill and spent the majority of the next three years in hospital between Craigavon, The Royal Victoria and Great Ormond Street Hospitals . After living in severe pain Blake and having 16 surgeries was diagnosed with Intestinal failure. We simply cannot be sure what, or how long the future is for Blake. We have tried against the obvious practical difficulties of his physical needs, and the constant danger of unforeseen health complications, to a make his life extra special. Given the particularly horrible time he has had to suffer over recent years, we see a trip to the States as being the thrill of a lifetime for him, and we are pushing forward as hard as we can with it, while hoping for help from anyone who feels they can assist